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On this page you will find some of the agencies and organizations that provide support to families of children with special needs that we found when preparing our mailing list of people who would receive the Hydranencephaly newsletter.
MUMS National Parent to Parent Network
PHP Home Page (Parents Helping Parents)
Patient Support Groups - Office of Rare Diseases Matrix Parent Network and Resource Center (based in California-I think) Family Support Network of North Carolina Share Experiences (Orange County) Parent Groups Resources (lots of links) Disease and Disroder Support Groups by Condition--Ask NOAH Association of Birth Defect Children Inc. - Your Birth Defects Information Source
UK CaF Home Page - Helping families who care for children with any disability or special need (UK) Helping Hands (this site mentions Mother Theresa, but does have links to support groups and information about caring for the caregiver)
Parent to Parent New Zealand
Canada BCACL Home Page (BC Canada) Family Support Institute (BC Canada) CALGARY COMMUNITY LIVING SOCIETY Contents North Peace Community Living Society (Peace River, Alberta)
Bear at top of page was adopted from Rainbow Connection Graphics
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indicates a directory that lists the Hydranencephaly web site or support group